There is no cure to Grace’s condition other than perhaps time . … the charity focusses on working together with individuals, families and medical professionals to offer support and information on syncope and reflex anoxic seizures
- For Patients
- Not particularly well known (took us months to discover it)
- Main comfort was having a point of reference, and emotional support for her condition
- Provides support groups and seminars Help with learning to live with the condition
- For Clinicians
- Education and Support Meetings and symposiums
- Cardiac and heart rhythm research
- Care pathways Encourage physicians to become heart rhythm specialists
